Am I elgible to participate if I live outside of Canada?
Absolutely. The G.R.I.T. Study is a GLOBAL clinical trial for rare disease patients. Anywhere you are in the world, as long as you have a stable internet connection, YOU ARE INVITED to join the study.
How often do I need to use the app?
As often as you need. We do encourage you to use the app regularly to help you keep track of your daily medications, symptoms or routines.
Other than myself, who will have access to the medical files and health data that I enter into the app?
If i get placed into the control group, will i not have access to the app at all?
EVERYONE will have equal access to the app at the end of their study participation. If you are randomized in the Placebo group, you will have access to Zamplo app.
I don't have any symptoms nor am I on any medication... how will the app benefit me?
It is good to hear that you have been doing well overall. The app is designed not only to keep track of your symptoms or medications but also your daily routines (e.g., taking your dog outside for a walk, doing stretching exercises, meditation, etc.) In addition, you can also jot down all the questions that you have for your healthcare provider in the app, instead of using sticky notes! If you want to learn more about all the other features of Zamplo, visit: https://www.zamplo.org/product-zamplo
Will I keep all the health data I have entered into the app even after the study has ended and once I switch over to the free version?
Yes, you have full ownership of the data that you entered into the app