Fabry International Network is an organization that is driven to improve the quality of life for people affected by Fabry disease through early diagnosis, treatment, and cure. ​
BOKS vzw is an organization that strives to support the health and wellbeing of children, youth, adults, and families affected by rare metabolic diseases. ​
The Fabry Support & Information Group (FSIG) provides a link for the Fabry community to information and each other to support families and individuals affected by Fabry disease.
The MitoCanada Foundation advocates for and provides support to those living with or at risk of developing Mitochondrial disease through education, awareness and research.  ​
The Canadian Association of Pompe helps those living with Pompe and their families through education, support and community. ​
The Canadian Fabry Association supports Fabry research and coordinates the diagnosis, consultation and treatment of people living with Fabry disease. ​
Rare Revolution Magazine is a digital magazine that spreads awareness about rare disease conditions by providing a voice to patients and patient communities 
Zamplo is a digital connected health platform that improves the physical and mental health of individuals by empowering them with the resources and tools they need to mobilize and understand their health data. ​